This is to let you know that tomorrow I will be going into hospital for about 3 weeks for intensive treatment for myeloma. This is a kind of blood cancer, in which the bone marrow produces toxins called paraproteins. These can cause anaemia, and damage the bones and the kidney, as well as leading to loss of calcium. I was diagnosed with it September-October last year after a routine blood test by the doctor revealed I was slightly anaemic. She referred me to the haematology department of Bristol’s BRI, who commenced treating me.
This is usually done for 6-8 months using a variety of drugs, which are different from those regularly used to treat cancer, and which don’t have some of their side effects, like hair loss. This meant going to the hospital once a week for an injection of the anti-cancer drug, and taking a variety of drugs, including an antiviral, to control the side effects. Most of these were pills, though one of the drugs was an anti-coagulant, which had to be taken twice a day by injection.
After this drug treatment has reduced the paraproteins as far as possible, they then take you into hospital for intensive treatment using the conventional cancer drug. This damages the immune system. In order to get it back up and running, they take stem cells from your own blood, store them, and then give them back to you. This consolidates the effect of the previous cancer treatment, and adds more time to the period of remission before the myeloma returns. I’ve already had my stem cells collected, which took a whole day connected to something similar to a dialysis machine. I’m due to be given the drug, and then the stem cells this week. I’m then due to spend the next several weeks in isolation at the BRI to protect me from disease while my immune system is still weak, and so that they can monitor me and make sure that the stem cells are properly taking hold.
I’ve received excellent care from the staff at Bristol’s various hospitals, not only the BRI, but also the hospitals in Southmead and Whitchurch. You are allowed to bring books and DVDs into hospital, as well as use laptops. I shall be taking a laptop into hospital with me, and hope to continue blogging while I’m there, if I can. If I can’t, for some reason, this is why.
I was in hospital being given a phosphate infusion as part of the anti-myeloma treatment the Sunday last year, when the CAA, the Sunday Times and the other right-wing papers libelled Mike as an anti-Semite and Holocaust denier, which infuriated me at a time when I could well have done without it.
I also understand that a number of other people have also been diagnosed with myeloma after random, routine blood tests. I’d therefore advise people to make sure that they have these done, even though they can appear to be an inconvenience. It could save them from more serious health problems later on.
Tags: Blood Tests, Bristol, Bristol Royal Infirmary, Campaign Against Anti-Semitism, Cancer, Computers, doctors, DVDs, Laptops, Libel, Mike Sivier, Myeloma, Southmead, The Sunday Times, Whitchurch
June 18, 2018 at 10:25 pm |
I hope all goes well…. Best wishes.
June 19, 2018 at 7:32 am |
Thanks, Simon! I’m sure it will. š
June 19, 2018 at 6:08 am |
get well as soon as possible! We all need you! xxx
June 19, 2018 at 7:30 am |
Thanks, Lesley! š
June 22, 2018 at 8:21 am |
Sorry to hear that. Please read some good SF and come back with fascinating analyses, I find them v interesting, if you feel up to it.
July 6, 2018 at 6:16 pm |
Thanks, Julian. Will do!
June 22, 2018 at 7:17 pm |
Get well soon Beastie!!! You mean a lot to many people here!!
July 6, 2018 at 6:17 pm |
Thanks muchly, Jo. As you all mean a lot to me.
July 2, 2018 at 9:47 pm |
Belated Very Best Wishes Beastie, keep on keeping on & all that.
July 6, 2018 at 6:18 pm |
I tried, but couldn’t when I was in hospitable, due to bad Wi-Fi connections. Ta very much for the best wishes!